Resources for Families

Overview

If your child has a combined hearing and vision loss, there are resources available to give you important information and support to help your child communicate, access people and the environment, play and grow.

If your child has a combined hearing and vision loss, there are resources available to give you important information and support to help your child communicate, access people and the environment, play and grow. The challenges of parenting a child with combined hearing and vision loss are unique, so we encourage you to reach out to us and learn what communication and education options might be available. We are not an advocacy organization, but we have a lot of information, skills, experiences and resources to share.

Listed below are resources at the state and national levels that you might find helpful.

American Sign Language Resources

• ASL Stories Directory
• American Sign Language at Home: A family curriculum
• MN DeafBlind Project YouTube ASL Storytelling Playlist
• Open Hands Library
• SignOn with American Society for Deaf Children
• The Gallaudet Children’s Dictionary of American Sign Language

General Resources

• Changing Spaces Campaign
• Crescent Cove
• CVI NOW: Perkins School for the Blind
• DeafBlind Services Minnesota
• Helen Keller National Center for DeafBlind Youths and Adults
• iCanConnect
• Minnesota Commission of the Deaf, Deafblind and Hard of Hearing
• Minnesota Hands and Voices
• National Family Association for DeafBlind (NFADB)
• PACER Center
• ProTactile: The Deafblind Way
• Rarely Familiar Podcast
• State Services for the Blind
• The Rare Life Podcast
• The Cole Foundation
• Wonder Baby

Resources Related to Syndromes that Cause Combined Hearing and Vision Loss

• CHARGE Syndrome Foundation For Families: Get Support
• Congenital Cytomegalovirus (cCMV)
  • National CMV Foundation
  • Minnesota Department of Health: CMV
  • MN Low Incidence Projects: cCMV
• Cornelia de Lange Syndrome Foundation
• Dandy-Walker Syndrome Alliance
• Down Syndrome Family Resource Center
• Goldenhar Syndrome Support Network
• Stickler Involved People
• Usher Syndrome Coalition
• Wolf-Hirschhorn Syndrome