Resources for Families

Overview

If your child has a combined hearing and vision loss, there are resources available to give you important information and support to help your child communicate, access people and the environment, play and grow.

The Minnesota DeafBlind Project has unique support. Deanna Rothbauer is a parent of a young adult who has combined hearing and vision loss (deafblindness). Right away, when you contact the Minnesota DeafBlind Project, you’ll connect with another parent who has walked a similar path. In addition, the education specialist has taught a wide range of students with combined hearing and vision loss, including those who are in the general education setting.

The challenges are unique, so feel free to reach out to us and learn what communication and education options might be available. We are not an advocacy organization, but we have a lot of information, skills, experiences and resources to share.

Listed below are resources at the state and national levels that you might find helpful.

• CHARGE Syndrome Foundation Minnesota Parent Liaison
• Crescent Cove
• DeafBlind Interpreting: National Training & Resource Center
• Helen Keller National Center for Deaf-Blind Youths and Adults
• iCanConnect
• Minnesota Commission of the Deaf, Deafblind and Hard of Hearing
• Minnesota Department of Education - Deafblind Information
• Minnesota Hands and Voices
• National Center on Deaf-Blindness
• National Family Association for DeafBlind (NFADB)
• PACER Center
• Perkins School for the Blind - Deafblind Resources
• ProTactile: The Deafblind Way
• Wonder Baby

Resources Related to Syndromes that Cause Combined Hearing and Vision Loss

• CHARGE Syndrome Foundation
• Cornelia de Lange Syndrome Foundation
• Dandy-Walker Syndrome Alliance
• Down Syndrome Family Resource Center
• Goldenhar Syndrome Support Network
• Stickler Involved People
• Usher Syndrome Coalition
• Wolf-Hirschhorn Syndrome